As a fellow blogger wrote, “If only it were so simple…”
Depending on the kind of mental illness and its severity, it might be like the cartoon below: feel the storm coming and hunker down. But there are other possibilities:
– Feeling the storm coming, and work frantically to batten down the hatches with the meds at hand before chaos…
– No warning, just the storm arrives, and there is nothing in the larder, no time to cancel, just SPLAT and then aftermath for a while…
– Or the storm arrives and passes…. and you wake up with your life in disarray, the house in need of Crime Scene Cleaners, your bank account empty and half your friends furious for mysterious reasons.
I know folks for whom each of those scenarios has happened. So if you have a friend with mental illness, be kind. If you are one of us, know that you aren’t alone, even if it feels like it. (And thanks, comic artist, for a great cartoon!)
The Lord said to Moses, “Say to Aaron: ‘For the generations to come none of your descendants who has a defect may come near to offer the food of his God. No man who has any defect may come near: no man who is blind or lame, disfigured or deformed; 1no man with a crippled foot or hand, or who is a hunchback or a dwarf, or who has any eye defect, or who has festering or running sores or damaged testicles. No descendant of Aaron the priest who has any defect is to come near to present the food offerings to the Lord. He has a defect; he must not come near to offer the food of his God. He may eat the most holy food of his God, as well as the holy food; yet because of his defect, he must not go near the curtain or approach the altar, and so desecrate my sanctuary. I am the Lord, who makes them holy.’” – Leviticus 21: 16-23
These words from parashat Emor are troubling. This is a commandment given concerning the kohanim, the priests of the Temple. It seems to say that anyone blind, lame, disfigured, or deformed is not as good as a “whole” person. It seems to say, “We won’t starve you – you have a right to live! – but we ask that you keep out of sight. You are not good enough to serve in the Temple.”
And indeed, there is a long sad history of human beings saying exactly that to family and community members who were physically or mentally different. Stay out of sight – or at least keep your disability out of sight. This attitude has also taken the form of pretending that disabled people are invisible. And sadly, these verses from the Torah seem to support the notion that the best thing we disabled folk can do is to stay out of sight.
For years, I hid my own disability when it came time to lead services, despite the fact that standing for any length of time gave me excruciating pain. I got the idea from this Torah portion that a person who was leading services should be physically perfect, and that if I needed a cane or a wheelchair to function, then I was not fit to lead a service. As a result, I was not at my best on the bimah (the raised area from which services are led.) I was fuzzy minded, clouded with pain. I mispronounced words. I forgot things. I did not give the congregation the leadership it deserved. Eventually, I decided that I should not be a congregational rabbi, because of the disability I struggled to hide.
I have changed my mind about all of it. First of all, there can be strength and beauty in the prayers of a person who sits in a chair or holds a cane. I know, because I have seen it.
Secondly, I look at the historical context of this commandment. Other ancient cultures exposed (killed) infants who were deemed defective. Even Plato says that in an ideal community, infants with defects would not be allowed to live. So anyone with a congenital disability was deemed unworthy to live: compared to that attitude, saying, “You can eat the holy food, but don’t serve at the altar” seems like a big step forward.
Third, we can look at the interpretation of the tannaim, the earliest rabbis who actually recalled a time when the Temple was standing. In Mishnah Megillah 4.7, Rav Yehudah says that a kohen with stains on his hands also may not give the priestly blessing, “because people would be inclined to stare.” If in fact the reason for keeping the kohanim with visible “defects” from the Temple service was that “people will stare” then it suggests that the problem is not in the disability, but in the reactions of the public to disabilities. Later rabbis went even further: in the Gemara, Megillah 24b, they say that if the kohen is known locally, and “people are used to him,” then there is no impediment to his participating in the service.
This clearly locates the problem with the distraction of the congregation. The kohen may not serve publicly if his disability makes it impossible for the congregation to concentrate.
In this day and time, since we know that it is wrong to discriminate against those with disabilities, this is a red herring. If I am “distracted” by someone’s race, or accent, or the wheelchair they use, it is my task to “get over it” – or more accurately, to get over myself. It is not fair, it is downright wrong, for me to say to anyone, “Don’t lead services, your disability is distracting.”
So if the literal understanding of this verse does not hold up to scrutiny, if a physical disability should no longer prevent someone from serving, what “defects” should keep one from publicly leading a service? Further on in tractate Megillah 29a:
Bar Kappara gave the following exposition: What is the meaning of the verse, “Why look ye askance, ye mountains of peaks, at the mountain which God has desired for His abode?” (Psalm 68:17) A heavenly voice went forth and said to them: “Why do you look askance at Sinai? Ye are all full of blemishes as compared with Sinai. It is written here “with peaks” and it is written elsewhere “hunchbacked or a dwarf.” (Leviticus 21:20) R. Ashi observed: You can learn from this that if a man is arrogant, this is a blemish in him.
The Psalmist asks why the greatest mountains, with beautiful peaks, look disapprovingly at little Mt. Sinai. The heavenly voice retorts, “Why are you criticizing Sinai? You are all full of blemishes!” Bar Kappara is drawing a parallel between the beautiful tall mountains looking down at Sinai, and the beautiful human beings looking down at a hunchback or a dwarf. Indeed, says Rav Ashi, the real blemish is arrogance.
Thus while this passage appears to reek of old prejudices – and in fact it may represent an old, bad solution to the problem of ableism – further study in the Oral Torah reveals it to be something quite different. If the real blemish is arrogance, then the arrogant may not lead services – but we’ll still feed them.
I can live with that.
Today was incredible.
When I got the notice about the Women’s Rabbinic Network trip to the Art Institute of Chicago, my first reaction was pure joy: I have loved that museum since I was a grad student in Chicago in 1980. I spent many a happy Sunday afternoon as a student strolling down those endless rooms, hanging out with one masterpiece after another.
Then I remembered: endless rooms! vast halls! It was then that I decided I was definitely bringing the scooter to Chicago with me. I couldn’t imagine creeping along on a cane, sweating, too distracted by pain to enjoy the place: no way.
So this morning I scooted down to breakfast, and met the group in the lobby. We all strolled together from the hotel to the museum. (The sidewalks could use a little work here, Mayor Emanuel!) It was a lovely day, brisk and bright, and I felt like I owned the city. How glorious to buzz down the sidewalk, chatting with friends!
We arrived at the new wing of the museum, which is mostly very accessible. I noticed a few things that might be difficult for some people: heavy bathroom doors, mostly, but the gallery area and the restaurant were great. The elevators were huge, and had I needed to reach a button, it would have been easy.
We looked at very recent modern art made by women artists, and our guide was great at helping us to really see the works. My only gripe was that our time with the art was short – we had a meeting with a wonderful scholar in the restaurant! But that was good too – for more about that, check out Four Cups, another entry in this blog.
After lunch, I took my own route home, stopping in the Museum Shop to buy a gift. I enjoyed the fact that I still felt so energetic, and that tucking a little package into my bag was not a problem. I felt so free.
I’m not going to bore you with days and days of blogging about this. If something interesting happens, I’ll tell you. But I think mostly this is about emerging from my personal Egypt, a narrow place of pain and self-imposed isolation. The world is bigger now, and I am free.
Linda dropped me at SFO this morning, and took this photo. The good news is that when I arrived here at my hotel, I was still smiling!
Traveling with the scooter takes patience. The airline questioned me about the battery and its carrier but eventually I was cleared for travel with it. I had done my homework, gotten the proper carrier, and allowed a lot of time, so I wasn’t worried. I know that people fly with these things, and that they fly on American Airlines with them, so it was going to be OK. And really, I’m glad they are cautious about people with batteries and other such devices.
TSA was interesting. My mantra going in was “I’m in no hurry” and that seemed to be the key. They had to test everything, including my hands (!) for bomb residue, but I and the scooter passed the tests. When I got to the gate, we had the discussion again about the battery but all was well: I was able to gate check the scooter and get to my seat.
Words cannot express how much easier this was than past experiences struggling through airports. When I went to a conference in January with my cane, I was in tiny airports and was miserable and exhausted before I even got to my destination. I was in pain all the time during the conference and frankly rather cranky much of the time as a result. I was continually mentally exhausted from pain management (or perhaps non-management.)
This was totally different. I navigated through SFO and O’Hare airports with relative ease, albeit with a few stops for discussion. I’m now at the hotel and happy to be in my room, looking forward to seeing friends tomorrow and excited about a trip to the Art Institute of Chicago. At any rate, while I am sure there will be some awkwardnesses, this is looking to be a completely different experience.
Tomorrow: Learning with the Women’s Rabbinic Network, and the first day of convention.
I’m preparing for a big adventure. This week I am traveling to Chicago to attend the annual convention of the Central Conference of American Rabbis. That’s the organization of Reform Rabbis in North America. I’ll see old friends, we’ll study and pray and tell tall tales, and it will be grand. The night of April 1, I’m going to shave my head.
This is the first time I’ve traveled so far in a long time, and I am a bit nervous about it. You see, my world has gotten rather small in the last few years due to troubles with chronic pain and arthritis. Nowadays, if I want to go farther than a couple of blocks, or if I am going to need to stand in line, I use a scooter. This will be the first time I’ve traveled with it. So there is a lot on my mind: the airports, the airplane, transport from O’Hare to the hotel, the reactions of colleagues when they see me on wheels — it goes on an on. I’m still self-conscious about using this thing. But if I don’t use it, I can’t go. And I am tired of letting my life get smaller; I have work to do!
I had coffee today with a friend who is an old hand at wheelchair travel. He was very encouraging – I might say he even gave me a gentle little kick in the tuchus. It’s easy to hide at home, but here is too much life to be lived, too much Torah for me to live, to give in to that impulse. I’m glad we had coffee, and I’m going to keep him in my heart as I buzz down the hallways of OAK and ORD and down the sidewalks in Chicago.
So wish me luck! Life is about to get really interesting.
.וַיַּרְא אֱלֹהִים אֶת-כָּל-אֲשֶׁר עָשָׂה, וְהִנֵּה-טוֹב מְאֹד
These words from Genesis 1 are simple and eloquent:
God saw ALL that God made, and behold, it was VERY GOOD.
This little line is key to many areas of Jewish thought, but none more so than in the arena of human rights. Human beings are all equal, whatever our race, whatever our gender, whatever our abilities, whatever our sexual orientation, we are all created b’tzelem elohim, in the image of God, and we are part of creation, which is tov me’od, very good.
This is especially important in the realm of disability rights. Most of us are familiar with the concepts of racism or sexism, and there’s general agreement that those are wrong. But then we look at a person in a wheelchair, or a person with a hearing loss, or a person with developmental, mental, or emotional disabilities, and we forget that they, too, are “very good” just as they are. This is “ableism” and it is pernicious.
Ableism whispers that the women in the wheelchair whose speech is slurred has nothing important to say. Ableism suggests that the developmentally disabled man who makes us uncomfortable should not be visible in our congregation. Ableism suggests that when accommodating a person is “too expensive” or “too much trouble” or “too uncomfortable” we can write it off with a shrug. Ableism suggests that some people’s feelings are less important, that their lives are less important, and that it is OK to write off certain human beings because gee, they are a lot of trouble.
Ableism is wrong from a Jewish point of view because it flies directly in the face of our core belief that all human beings are equal, and all creation is very good.
Jewish tradition has a rocky history around issues of disability rights. While in Leviticus 19:14 we are commanded “not to curse the deaf, nor put a stumbling block before the blind,” two chapters later we read Leviticus 21: 16-21, which outlines physical requirements for the priests who will lead public worship. The priests who lift their hands in worship and participate in the sacrifices must be physically perfect. Maimonides explains this rule by writing “most people do not estimate a person by his true form, but by his limbs and his clothing, and the Temple should be held in the highest regard” (Guide to the Perplexed, 3:45.) In other words, people are ableist, and this requirement is in place because of our shortcomings, not because there’s anything wrong with the person with a disability.
Ableism is as bad as racism, as bad as sexism, as bad as homophobia, as bad as ageism, as bad as any other “-ism.” We can learn better. Just as we can fight racism and other prejudices in our hearts and in our behavior, we can fight ableism. We can change. We can demand change in our institutions and in our communities.
God saw what God had made, and behold it was very good. Isn’t it time we took God’s word for it?
I took the leap into my new home with two projects in mind:
1. Radical Hospitality – I’m going to “do Jewish” here regularly and often, with many different people. That includes Shabbat afternoon hang-outs, Shabbat dinners, and other celebrations or ordinary times.
2. Asking for and accepting help – My body doesn’t allow me to play the Lone Ranger anymore, doing everything for myself. I tried dealing with that by isolating a lot, and the result was that I lived in a half-moved-into apartment for five years. Now I’m going to do it differently: asking for help, accepting help, being gracious and when I can, combining that with being Jewishly hospitable.
Hospitality, so far, has begun with a bang. I think I’ve had more guests in my house in the past 12 days than I had in the previous 3 years. Most of it was holiday related, and not at all routine, but I am not a hermit anymore. This is good. Also, I’m enjoying it. I like having people over. I like doing Jewish with old and new friends.
Asking for and accepting help has also been a success, but that one is really giving me a spiritual workout. Two of my students and one other friend were here Saturday night, assembling bookshelves for me. I am so grateful to them – my back and knees won’t permit me to do any of the stuff they were doing – but oh my goodness, I am uncomfortable watching people do things for me! The alternative, though, is (1) do without or (2) hire people. For years now I have worked with a combination of those two, and frankly it was not life-enhancing, especially since after a while of muddling through, I didn’t want to have anyone in, friend or hired, because of the clutter. So I am faced with a choice: learn to accept the goodness of others, or be isolated.
So last night I accepted the generosity of three people who did not owe me anything, and it didn’t kill me. No one is going to hold it over my head, or take it out somehow later. It’s OK. And I look forward to giving back with things I have to give: Jewish learning, food, warmth, and so on. I am not “less” for needing their help, nor am I in some sort of mysterious trouble for accepting it.
Kol Yisrael aravim zeh l’zeh: “All Jews are responsible for one another.” I have always taken that as a challenge to look for others that I can help. Being on the giving side has become easy for me. Being on the receiving side is a new lesson to learn.