On my scooter.
When I applied to rabbinical school in 2001, they told me to take the GRE (Graduate Record Exam.) On the opening screens of the test, it asked demographic questions, including a question about disabilities. I had never used that word to describe myself, and I started to click past. Then I remembered: oh yeah, the learning specialist I saw made me go see an audiologist, and I’m hard of hearing. OK, I’ll click that.
And as my eye moved on, I realized with shock that I had other boxes to click. Learning disabilities? Uh, yes. That was why I’d seen the learning specialist. Mobility problems? I eyed the cane propped against my chair. Yeah, I guess. I quit reading and clicked to the next screen, where it fed me back my demographic info, including the words “multiple disabilities.” I felt queasy, clicked past, and shoved the whole thing out of my mind to take the test.
That was the first time I admitted to having ONE disability, and I will admit now that I read “multiple disabilities” as “object of pity” which I had no intention of being. I spent the next year proving I could keep up with my twenty-years-younger peers, in class and out, and by the end of the year I was on antidepressants (for one of the other little issues I hadn’t mentioned) and my body was a wreck. I was deep into chronic pain territory, and determined to deny everything.
Because, you see, I had two problems with this multiple disability thing: first, I looked down on disability, so I couldn’t possibly have one (much less lots of ‘em) and secondly, my disabilities weren’t legitimate. Other people had worse disabilities so I couldn’t possibly take up room in that category. Or something.
It was years before I finally owned the category of “disabled,” thanks to the encouragement of friends whose disabilities I regarded as legitimate. Then, and only then, was I willing to take the blue placard the doctor offered me, which has made life so much more manageable. There were more years, and more isolation, before I was willing to step up and get myself a scooter so that I could go places that required more than 10 minutes of walking or standing. And I must confess that to this day, I spend more energy than I should worrying that someone will think I am using the scooter because I’m fat, and they’ll judge me, and — what? I’ll die? I will eventually grow up and quit worrying about that, too, I hope.
So why am I yammering about this on a Jewish blog? To start, Torah covers all of life: there is no subject about which there is no Torah. I needed to learn to accept the body I’ve got, to regard it as holy, and I’ve made strides in that direction. But even more, there’s this legitimacy thing. I was hesitant to accept a handicap placard for the car because I didn’t see myself as legitimately needing it. In the same way, I remember my longing for Jewish legitimacy: the thrill when I stepped out of the mikveh, the struggles I had every time someone questioned my legitimacy as a Jew, because no one questioned it more than me. And then eventually I learned the truth: I would be a real Jew when I acted like one.
So here I am, 100% Jewish and definitely disabled. Also fat, lesbian, Southern by birth, Californian by choice. Pretty smart in some subjects, remedial level in others. A work in progress.
I believe that every human being has a spark of the Divine. I have very little trouble believing that, except when it comes to myself.
I gather a lot of people feel that way. So to all of you (and myself) I will say: Wake up! Life is marvelous, terrifying, a gift we have only for a short time. Figure out how to make the most of yours, and do what you can.
As for legitimacy – well, more about that later. I’m on a roll.